“A qualitative study of multiple sclerosis specialists’ experiences and perspectives in managing family planning in people with multiple sclerosis”
Publication Details
Fragkoudi, A.,
Rumbold, A.,
Burke, T.,
&
Grzeskowiak, L.
(2024).
“A qualitative study of multiple sclerosis specialists’ experiences and perspectives in managing family planning in people with multiple sclerosis”.
Multiple Sclerosis and Related Disorders, 82.
Abstract
Background: Managing multiple sclerosis (MS) in people of reproductive age can be challenging as treatment decisions often need to balance efficacy, safety to reproductive health and an understanding of reproductive intentions. There has been limited examination of how family planning (FP) is approached in people with MS (pwMS) in Australia. This study aimed to explore the experiences and perspectives of Australian MS clinical specialists on managing FP in the context of MS.
Methods: We conducted one-on-one semi-structured interviews with nine neurologists and ten MS nurses across Australia who regularly provide care to pwMS of reproductive age. Interview topics examined current approaches to managing FP, availability of FP resources, and opportunities for improvement. Interview recordings were transcribed verbatim and analysed thematically.
Results: Two main themes emerged. First, ‘inconsistent approaches in providing family planning’, where neurologists and MS nurses recognised FP provision as essential but revealed differences in the content, timing and extent of FP discussions; conflicts between reproductive considerations and DMT prescriptions according to teratogenic risk; and variable implementation of interdisciplinary approaches. Second, ‘barriers in providing family planning’ emerged which included a lack of local information resources on FP, lack of contemporary data on safety of DMTs, and a range of patient and professional factors, including time constraints.
Conclusion: MS clinical specialists saw FP as an essential part of the care of their patients and expressed a need for information and service provision consistency in order to improve FP and reproductive care to pwMS.
Keywords
multiple sclerosis, family planning, neurologist, MS nurse, qualitative research
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