Date of Award
Master of Health Sciences (Research)
Schools and Centres
Ovarian cancer is the second most common gynaecological cancer and the eighth-most common cause of death in Australian women with a five-year relative survival of 46%. Using a ‘ground-up approach’ and patient involvement, this research project implemented a sequential mixed methods approach to develop a health-related quality of life outcome measure across the disease trajectory.
The six key themes identified from initial qualitative data highlighted treatment-related and psychosocial challenges alongside financial issues, relationships with health professionals, and patient coping strategies. This informed the generation of items necessary to develop a draft health-related quality of life tool. A cognitive interviewing technique established the content validity of the draft items. The final draft scale comprised 38 health-related quality of life items across three domains: physical health/functioning wellbeing, emotional wellbeing, and social wellbeing; each rated on a five-point frequency response scale. Field testing and evaluation of psychometric properties could be the focus of a future study.
Boban, S. (2021). Implementation of patient involvement in the development of a health-related quality of life patient-reported outcome measure for ovarian cancer (Master of Health Sciences (Research)). University of Notre Dame Australia. https://researchonline.nd.edu.au/theses/302