The lived experience of multiple sclerosis: Patient insights to guide general practitioner care
Publication Details
Burke, T.,
Greenland, R.,
Brady, E.,
&
Morahan, J.
(2022).
The lived experience of multiple sclerosis: Patient insights to guide general practitioner care.
Australian Journal of General Practice, 4.
Abstract
Background
Multiple sclerosis (MS) is a neurodegenerative disease with symptoms that are varied and unpredictable, and although there are effective medications to treat some forms of MS, there is no cure. For many, an MS diagnosis means decades living with a chronic illness and disability.
Objective
Providing medical and support care to people with MS can be a long and complex partnership between the patient and the general practitioner (GP). The aim of this article is to provide knowledge of the lived experience of MS and the factors leading to a reduced quality of life.
Discussion
Often alongside the considerable threats to physical health and neurological function that MS poses, there are also significant mental health burdens. This article uses lived experience to outline some of the crucial trigger points where support from the GP, and the wider general practice team, can have a significant impact on a positive path forward for the patient.
Keywords
Multiple sclerosis, Neurodegenerative disease, General practice support, Chronic disease support
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