Abstract

Objective: To test a model comprising explanatory (neurologic impairment, coping, personality) and mediating (resilience, self-efficacy, hope, social support) variables on psychological adjustment and burden among family caregivers of individuals with traumatic brain injury (TBI) vs spinal cord injury (SCI).

Design: Structural equation modeling with multigroup analysis.

Setting: Six rehabilitation centers across New South Wales and Queensland, Australia.

Participants: A total of 181 family members (N=181; 131 TBI, 50 SCI). Interventions: Not applicable.

Main Outcome Measures: Connor-Davidson Resilience Scale, Eysenck Personality Questionnaire, Ways of Coping Questionnaire, General SelfEfficacy Scale, Herth Hope Scale, Medical Outcome Study Social Support Survey; and 4 measures of psychological adjustment including: Caregiver Burden Scale, Medical Outcomes Survey Short Form-36 (SF-36), General Health Questionnaire-28, and Positive and Negative Affect Scale.

Results: The model for the aggregated sample demonstrated a very good model fit (x2 =47.42, df=39, r=0.167, normed fit index=.962, incremental fit index=.993, Tucker-Lewis index=.985, comparative fit index=.993, root-mean-squared error of approximation=.035). Multi-group analysis found significant commonalities in the pattern of relationships among variables across the 2 groups. In the only differences found, neuroticism was significantly more influential on burden in family members supporting individuals with TBI than family members of individuals with SCI. Furthermore, problem-focused coping was statistically more influential on positive affect in family members of individuals with TBI when compared with family members of individuals with SCI.

Conclusions: The study found significant similarities in the patterns of resilience and psychological adjustment among family caregivers of individuals with TBI and SCI.

© 2021 The American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.

Keywords

brain injuries, traumatic, caregivers, emotional adjustment, rehabilitation, resilience, psychological, spinal cord injuries

Link to Publisher Version (URL)

10.1016/j.apmr.2021.06.016

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